I can hardly believe it! It's been almost ONE YEAR since Kaleb was born and we're less than a month away from it being a year since his open heart surgery. Man I have gone thru so many emotions this last year all starting at my 3rd trimester of pregnancy but you know what God has taught me so much this year. I have matured spiritually beyond anything I could have ever imagined and feel blessed that He would choose me to be the mother of our precious little Kaleb! At times I still feel like I'm not completely over the emotional torment of the months of care and worry after his surgery, but I've gotten thru..... One day at a time..... March on brave soldier. My mom said I would look back a year from then and be like "Whoa!" and I am so there! Lol.
So Kaleb's check up is on Friday (October 8th), which is less than 2 days. He will have a sedated echo cardiogram, where they knock him out and put his little body in all sorts of weird positions to do an ultrasound of his heart from every possible angle; then, he has a check up with his cardiologist Dr. Mack after he wakes up and eats a bit, that is when the doc will give us the results of his echo. Oh man just talking about it makes my stomach do somersaults, I get queasy and dizzy just thinking about going back there and I think what if some thing's wrong, what if he needs more surgeries, what if this, what if that, what if, what if, what if...... Point is.... I don't have control over it. God does. He knows the outcome so I'm just going to do my best to rest in Him and I do trust Him no matter what happens (Lord, help me not forget that!).
I'll let you all know how he does. I'm hoping for everything being perfect and that he can go off the aspirin and the antacids. It'll be so weird that day. The day where I don't have to give him medicine in the morning and at night. I'm going to feel like I'm forgetting something every morning and night for a while.
But really! I feel so so blessed. This time of year was HELL for me last year and I'm hoping and optimistic that this year will be just the opposite!
Kaleb was born with TGA (transposition of the great arteries, where his pulmonary artery and aorta grew in backwards) and an aortic coartation which is a narrowing of the aorta. Because of this his body was not getting enough oxynegated blood so it was corrected via open heart surgery when he was 6 days old..... This is his story....
"Do you not know? Have you not heard? The Lord is the everlasting God, the Creator of the ends of the earth. He will not grow tired or weary, and his understanding no one can fathom. He gives strength to the weary and increases the power of the weak. Even youths grow tired and weary, and young men stumble and fall; but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." Isaiah 40:28-31 (NIV translation)
I just came across your blog and wanted to tell you how beautiful your little boy is. Your story reminds me so much of my own. Our 1st child was born almost 5 weeks early (5 lbs 15 oz) with TGA. We didn't know about it before he was born.
ReplyDeleteWe were just at Primary's last week for an echo. Believe me, they get a whole lot easier from about the age of 3 on. My Jack loves them now b/c he gets to watch movies.
The first year of my son's life was difficult, but we made it though. Now, we don't even think about his heart except for check-up time. He is an adorable, perfectly healthy 7 1/2 year old and a wonderful big brother to his 2 sisters and baby brother (all of whom have healthy hearts :).
I hope your little guy continues to do well. I know he will.